Nightmares

I am back on SPI and Lori is home in Maryland after our three days at MD Anderson.

It has been a nightmarish past four days and the next few months are going to be worse.

As we all know life does not stop for individual crisis regardless of how hurtful or awful they may be.

We have a project that will make tens of millions of dollars and it is ready today to expand.

All technology risk has been removed.

All operational protocols are in place.

All the "guesses' and "what ifs" are gone.

We have grown and sold (and they tasted great) the largest shrimp ever farmed. 

And they were produced in an "all-natural" system. 

I will be heading to Maryland on Sunday and will be there at least a week perhaps more. 

And at least until I have a strategy in play that I feel has some possibility to save my wife's life.  

Below is the update after this week's trip to MD Anderson that we sent to family, friends, GBT staff, etc. 

“The reappearance of new brain metastasizes as well as in her lungs has made Lori' situation far more critical. To that end we are considering a variety of unfortunately often inconsistent treatment regimens and next steps. 

Given the new and negative test results  Lori's original oncologist Dr. Hendricks in Suburban Hospital Maryland is recommending a different chemo treatment for the new lymphatic type tumors in Lori's lungs. This would be using the drug INIPARIB that is in trials in John Hopkins, which has shown great promise with triple negative breast cancer. (This is what Dr. Hendricks is suggesting Lori consider versus the treatment Dr. Marjorie Green (MDA) has suggested) 

The MDA team lead by Dr. Marjorie Green, are suggesting a very strong chemo (I&C) "called end of life treatment" which is a combination of "Ixabepilone and Capecitabine". It is brutal and once she gets on it, it is for the rest of her life and it will eventually kill her if the cancer does not. 

On a more positive front the Israeli's have been accepting and saving terminal TNC patients with brain metastasizes using a vaccine in conjunction with chemo., The vaccine is called ImMucin . It is not even available in the USA but working through contacts we have been in touch with a Dr. Gendler, a TNC researcher at the Mayo Clinic in Arizona who has been working directly with the head researcher in Israel at Hadassah Medical Center and it is appearing that if Lori's tissues are IMMUCIN positive she is an ideal candidate for the vaccine. 

So, Lori's tissue slides will be FedEx-ed to Dr. Gendler and Dr. Cohen (Mayo, Arizona) in Arizona tomorrow. If she is IMMUCIN positive she is then a candidate for the vaccine.

All sides seem to agree she must have the brain lesion taken care of immediately with the caveat that the gamma knife procedure does not disqualify her from the INIPARIB trials. Her gamma knife surgery is scheduled for 6/22 in Houston at MDA.

Lori is experiencing real pain in her sternum, her chest, and on one side of her pelvic area. 

So here is where we are. Do we go with "end of life chemo" treatment recommended by MDA, the Ixabepilone and Capecitabine (I&C chemo) or do we go to Hopkins and try the INIPARIB, And in either scenario we must pray her tissue is a match and then we start trying to secure the ImMucin 1 vaccine in Israel as ASAP.

I will be flying home to Maryland this Sunday and pray 1) her tissue is a match for receptability for the IMUCIN 1 vaccine, 2) that the INIPARIB trail at Hopkins will accept her quickly and 3) we can discard the end of life chemo scenario recommended by MDA. By the way, I wrote months ago how impressed I was with MDA. I know they have saved thousands of cancer victims but at this moment I truly feel they have failed Lori”.